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Showing posts from November, 2016

I did some exercise! Sort of.

I did in fact do some exercise in the technical sense of the word.

I got on a Exercise bike and I moved my legs on it so in fact I did exercise.

It caused tremendous and immediate pain on a level that is pretty indescribable except to say that it just got worse and worse and worse.

I tolerated 2 minutes of that torture.

Yes. Two minutes.

I know that sounds super lame and pathetic. And it is. But I have not been exercising for some time so I have to start at zero and zero means basically this horrible start point of epic pain from the get go.

It basically goes like this. Exercise is very, very painful. It always is painful. It never stops being painful. I do not understand these endorphins people talk about but I would sure like some of that business. In the beginning it is extremely excruciating for just a wee amount of time. Then you can add a little more. Like a minute. Then a minute more. Until you get up to 10 minutes consistently of this really intense pain, but no l…

Chronic Illness Bloggers Holiday Giveaway

Chronic Illness Bloggers Holiday Giveaway will run from November 23 to December 3, 2016. There are great prizes on line to win, some of which I have reviewed already. FibroCane or Organic Aromas both or which were my favorites and I use regularly still.


There are 11 Prize Packs to win and value around $400 to $600. 2 of the Prize Packs are available only to US-based winners. As winners are chosen at random, if a non-US- based winner is chosen for one of the US-only prize packs the winner will have the option to either have the prizes shipped to a US address of their choosing or to forfeit the prize.

“This giveaway is sponsored by Chronic Illness Bloggers. Prizes have been donated by the following: Alisha Nurse -; Aromafloria - ; BackPainBlogUK -  ; Bridgwater Crafts - ; BeingFibroMom – ;Broken Teepee - http://br…

Day 28 HAWMC Victories and Challenges

5 Challenges & 5 Small Victories. Make a list of the 5 most difficult parts of your health focus. Make another top 5 list for the little, good things (small victories) that keep you going
Naming difficult things, yeah, that is easy peasy. There are a lot of difficult things that come with chronic pain conditions for me. Things that I really struggle with.
Work: I have not been able to consistently manage work for over a decade. It has been working, then going on a short term leave, then working, then leave. Then a long term leave. Finally the pain clinic said, hey, you simply are not capable of working full time, which frankly, I knew, my family knew and seemed pretty obvious but had to be bluntly pointed out it seems. But when I tried That, I could also not function that way either. Even though simpler job with less stress. So now trying for yet another leave of absence. It is a tiresome struggle I must say. And one that is necessary because one needs money to surviv…

Day 27 HAWMC: Selfie

Sunday Selfie: Post your favorite picture of yourself. Don’t be shy, it’s time to shine! I took this while on a vacation at a cabin. Just chillin. Then I made a double exposure of it from another picture taken there!

Review: Targeted Medical Pharma

"I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. "

Targeted Medical Pharma :  I review three products for this company. It was quite exciting because it targeted three important areas of my chronic condition: Pain, fatigue/cognitive function and the infamous sleep issues. All at the same time for the course of three months for the trial I took them for. I recommend reading the product information on the website yourself or even the links I provided you for some in depth into on what they are using. It is fascinating. I like their methodology and I like the products they have designed. So I am going to give a speel here on the products themselves. All of which you can find in detail on this page on their site because it is important to understand what they are doing here. Then I will follo…

Day 25 HAWMC: Health and pain care

As health activists, we are on a mission to innovate healthcare. If you could change one thing in the healthcare landscape right now, what would it be?

I am Canadian not American. If I were American there are more than a few things I would change because I know people who suffer under a system designed in such a way. Nevertheless, I am not.
I live in Canada. We have great healthcare. I go break a bone, go get it fixed at no cost to me. Bravo. But say they prescribe a medication for it. I have to have a plan through work. If I don't I pay out of pocket. If I have a crappy insurance plan then I pay most of it. I personally have 80% coverage, my spouse has 80%, so I pay nothing, usually.
What I would change is that medications are also free to patients and are a part of Healthcare. I say this because by the government taking it on they actually would save money in the long run and people would be able to get any medication they needed. Not just the ones they can afford on…

Day 24 HAWMC: Picture it

Choose 3 images that represent your health focus. Share the images in a post and explain why you chose each of them.
I choose this one because I am focusing on this in pain management to decrease the suffering that comes with chronic pain. Not the pain, which I cannot control. But the suffering. Things like meditation which is important to get into the habit of and I find quite useful. Other things are a gratitude journal, a mood journal and distraction techniques. Then of course, relaxation breathing for when the pain is brutal.

This one words and all I choose because of the nature of the Facade we use to mask our pain. I use humor as a firm base to mask my pain and when I don't use that I am very stoic and quiet. Either way, I have to remind myself that not communicating about my pain isn't always a good thing. I am the sort of person who prefers to suffer in silence. I don't like the pain game. Where I say I'm having a bad day and someone inevitable has t…

Day 23 HAWMC Not real?

Say WHAT?! What’s the most ridiculous thing you’ve heard about health or your condition. Was there any context? What did you think at the time you heard it – and what do you think of it now?
I've heard some pretty ludicrous things to be honest about migraines, depression and fibromyalgia. But I would say the worst one systemically is that fibromyalgia is not real... and it is a garbage diagnosis.
I once had a severe case of costochondritis with my fibromyalgia, which is the rib cage inflammation that causes chest pains. It was due to a summer job I had in university at the time. I was a baker and it required heavy lifting and repetitive movements. The pain started slowly as just sharp jabbing pain and got worse and worse, until it was all day and all night. I had this suffocating feeling and constriction. Nearly passed out on day after drinking, likely because That made it worse. Well, that landed me in the ER. Clearly it wasn't a hear thing but I had no idea what …

Day 22 HAWMC: Pro tips

Tip Tuesday!Have you mastered the hashtag? Figured out the Instagram algorithm? Or maybe you have a few tips to in crease your blog followers. Whatever it is, share your expertise with your fellow HA’s - it’ll only make our community stronger! I don't know if I have any Pro-tips that I didn't mention in my previous post. Like the always use a image in your blog and the article I posted about good ways to go about that. So there was that, that I had previous mentioned. Very important to have visuals of good quality to match what your post is about and draw people in. 

2-For engagement I follow a simple recipe on my Facebook page that gets me good engagement. Minimum I post three images I have made and thee articles I have found. The rest like shares I have shared to the page is all bonus material. Share other pages when they ask you to, and they will share back. Promote other bloggers. Post your images in support groups you are in... usually my amusing ones or ones…

Day 12 HAWMC: Sunny days

Monday Motivation:What's your life slogan? Explain what words or mantra that keep you going and why.
It can't rain all the time.

If you give the context of the movie perhaps you'll grasp I'm not exactly a glass half full sort of person. In fact I have depression as well as chronic pain. Chronic pain came first and one would suspect it is inevitable that one would develop depression from that. But it isn't. It isn't inevitable, just more probable. I dealt with a milder version of depression when I had fibromyalgia when I was younger, that is just FM by itself. And I got through that. Then the chronic migraines came along and deeper depression developed. But I remind myself it can't rain all the time. Bad pain days are the worst for mood, but bad pain days are not every day, are they? Or not all day every day. It does fluctuate somewhat. There is another saying; it is a bad day, not a bad life. I do not like that one as much because my mind goes, we…

Chronic Illness Bloggers Holiday Giveaway

Chronic Illness Bloggers Holiday Giveaway will run from November 23 to December 3, 2016. There are great prizes on line to win, some of which I have reviewed already. FibroCane or Organic Aromas both or which were my favorites and I use regularly still.


There are 11 Prize Packs to win and value around $400 to $600. 2 of the Prize Packs are available only to US-based winners. As winners are chosen at random, if a non-US- based winner is chosen for one of the US-only prize packs the winner will have the option to either have the prizes shipped to a US address of their choosing or to forfeit the prize.

“This giveaway is sponsored by Chronic Illness Bloggers. Prizes have been donated by the following: Alisha Nurse -; Aromafloria - ; BackPainBlogUK -  ; Bridgwater Crafts - ; BeingFibroMom – ;Broken Teepee - http://broke…

Day 20 HAWMC Journey

What has been the highlight of your health activist journey? We want to hear all about it, perhaps a conference, a podcast or meeting a fellow HA. What made this experience so special? I have not met any other activists in real life. I do not travel well or have expendable money. I will say a migraine activist by the name of Teri Robert (Putting Our Heads Together) inspired me a great deal. Back in the day when there was little information out there, little support groups... not much of anything she was the resource of information of migraines. I had been researching on my own for Fibromyalgia at the time. But I needed to know more about migraines because they were becoming a Problem. I learned from researching on her site that one cannot take too many OTC meds or Triptans without rebounding. Something I was never told. I was simply told to take them when I had a migraine. So I knew going forward, as the frequency was increasing to watch that. I learned what a status migraine…

Day 19 HAWMC: Rough days

Everyone has tough days, but how do you pull yourself out of the rut? Maybe you blog, repeat affirmations or listen to a favorite playlist. Write about what tools, tips or practices you use to lift your spirits after a rough patch.

I'm an introvert. I know. Surprising. As such, when I have a rough time in anything but especially pain wise I need down time. I need some me time. I need to chill and recoup. Especially self-care.
What I find most important on these days are the things I intrinsically find pleasure in in and of themselves. Things that make me happy. Which all happen to be introvert things it so happens because that is indeed what I am. If you are not, it might entail things like leaving the house... in which case you might have to improvise and do things like invite people over, play video games with people online, facetime, call people... extrovert things. I admit extrovert things are not my forte. I always thought ambiverts though were very fortunate peo…

Day 17 HAWMC: Rest

Throwback Thursday! Grab a post from your archives and repost it! Add a few sentences at the beginning to frame it. Why you chose it. Why you liked it. And why it should be shared again. This is one of my favorite posts. It is a really simple topic. But one that fails to get through my fat head many a time. That I cannot push through the pain, exceed my limits and just hope for the best with that method. I have to pace myself. Conserve my energy and, yes, rest. Without guilt. 1)Do stuff
2)Stop it.
3Lie down

I see a psychologist who specialists in pain management to help me with all that lack of pain management. It is all about relaxation techniques, meditation, biofeedback… blah, blah, blah. There is a fundamental flaw in all of this and that my failure to grasp the three steps outlined above.

Fundamentally along the way with chronic pain we figure out to mask the pain and to push through the pain… all in the aim to function on some level. Often a crappy un-fun level, bu…

Day 18 HAWMC: You know you hate it…

What’s a health cliché that really bugs you? What are you tired of people asking you or saying to you again and again? Write it down. Then reclaim it! Take it back and turn it around so you make is something you could be comfortable hearing. You lost weight, you must be feeling better. Conversely, when I gain weight, I must be feeling worse. This concept that ‘skinny’ is healthy and ‘fat’ is unhealthy is driving me nuts. I gained weight from hypothyroidism and then more for medications for migraine prevention. Top weight was 165 pounds on my five foot four body. And I got comments on how better I would feel if I exercised and ate right. Implying I was doing neither. Like they even know what the chronically ill Do for their health. They do not. Then I lost some weight being put on Topamax. And then even more from becoming nauseated in the extreme for a year and ongoing. Down to 120 pounds. And Now, well ‘You look Great, you must be Feeling so Much Better!’ You mean other than …

Day 16 HAWMC: Advice to activists

Wisdom Wednesday: What advice do you have for health activists just starting out? Share your words of wisdom for all the health activist rookies out there! Just starting out. Well first thing is pick your platforms you want to use to go with your blog. Too many is never a good idea. For example for my blog I auto-post to Facebook and Facebook auto-tweets to Twitter. And then I post 3 articles and 3 images to my Facebook account and manage my Twitter. That is sufficient. I do auto-post to G+ but rarely manage it. So choose what you like best. Instagram? Facebook? Pinterest, mind you if you do content creation for your blog and Facebook Pinterest is a friend. When it comes to posting my best advice is fourfold: 1) Tell your story in the most honest way possible and to the best of your ability in every post you make. 2) for some posts send a specific message. Design a post like '8 ways chronic illness ____' or '10 ways migraines ____' because those posts are …

Day 15 HAWMC

We are on day 15 of the WEGO health activist blog challenge!
Time to spread the love. Shout out all your favorite HA’s! Make sure to share a few sentences explaining just how grateful you are for them
It is great to see a community of bloggers get together and spread awareness about their conditions. Why I love blogathons to be honest. There have been some great posts along the way and some great bloggers. Dear Dr. What’s-Your-Name… I think I have in fact met this doctor. He and others like him is why I don't go to the ER for status migraines. Because they don't care. They don't treat me. And why when I Didn't go to the ER for a status migraine I ended up with permanent nerve damage. Hell, it wouldn't have made any difference had I gone. Even when I went to My doctor at the time about the nerve damage he said it was likely a form of persistent migraine aura, even though I told him that tactile persistent migraine auras were exceptionally rare and this did…

Day 14: HAWMC : rant it out

Case of the Mondays.Write about something that gets you down, burns you out, or makes you sad.Purge it in a blog post. Turn it around at the end and tell Tuesday why you’re ready for it.
Pain makes me sad, well depressed. The more pain the more depressed I am. And the pain has been up there for months.
I have been really worried about my long term disability appeal. I get that I am disabled and I get that I cannot work, as my doctors tell me. But this is proving it to an Insurance company and that is like a toss up. It is so random their decisions. I don't know who their specialist are they consult... it could be a nurse or something and not a specialist at all for all I know. I don't know what proof they need? The lesions on my brain? That should be sufficient really. What about impact on my life? That should count for something. I worry because I am powerless in a decision that is vital to me. They have all the power and their actual job working for an insurance …