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Showing posts from July, 2010

Interesting work twist...

The area manager had declined my request for accomadation, which, yeah, totally ticked me off. The fact that she could not concieve of someone being disabled by chronic pain and a way to accomadate that and of course the threat to demote me. Well, my boss had also followed procedure and set a request to our HR to cover all basis. They got back to her with a request form for more inforamtion from my doctor in order to assess an accomadation package. Now this is what I had initially expected from management. A thorough assesment and recommendation. All professional like.

Problem is do I proceed or not.

Obviously there are some issues with higher management and their inablity to understand my situation let alone help out with it. Therefore if I do push through a claim I can expect a cold reception on that end, possibly positively experience some negative effects that will affect my job with them, my position or even my employment. Yeah, the stigma of chronic pain. They may be…

My work situation is so annoying and fustrating

We were short staffed the last two weeks, so I've been covering for a few people. Making sure I came in even though it was a week of violent migraines, along with violent storms. I was glas to do it, my co-workers help me and I am more than willing to help them back with whatever they need. My boss says to me now you know how they feel when your gone, because I was quite busy, but I liked that, more of a pain distraction. And I thought to myself, not the same. They would cover my work for sure and that would be that. I covered for two people, while having nasty migraines. So not the same. That irked me a bit.

But then the bosslady comes in for a chat, cause she has heard form above the ladder. They have decided in their brilliance that I cannot miss any more work. And if I do then my 'role' is not 'appropriate' for me... so being the kind hearted people they are they will then demote me to the role I did before, which would actually make things worse. Wh…

Stigma of migraine is significant; worse for those with chronic migraine

Stigma of migraine is significant; worse for those with chronic migraine

This article caught my eye for obvious reasons. I have faced that stigma... usually in the form of 'if you do such and such they would not be so bad'... in other words they might understand migraines, but not the imapirment involved in chronic migraines. It is the same with FMS... someone may understand muscle pain but not chronic pain plus the other problamatic symptoms. And that stigma is fustrating and isolating. They state it can lead to depression and anxiety and they are right... because we feel judged, misunderstood and alone. It also makes me feel angry... very angry. Maybe because I've been through all this before with Fibromyalgia which carries with it a hefty stigma on its own, causing me to minimilize its effects to everyone, including doctors and not mentioning it to employers or casual friends. I would do the same with migraines if I could... but they are a great deal harder to hi…

New criteria proposed for diagnosing fibromyalgia

New criteria proposed for diagnosing fibromyalgia

This is indeed good news. The tender point test did seem rather minimal since it only takes into account pain and ignores the other prodominate symptoms. Certainly it could lead to earlier diagnosis in FMS patients, because, seriously, if it takes a decade to diagnosis someone there are some issues with the methods. I recall when i finally got my diagnosis that they were too late... by then FMS had impaired a great deal of my ability to function in many aspects that I simply had to cope with on my own, often including stopping activities that became too draining or painful, when it fact early treatment would encourage a certain level of activity. Helping with the cognitive impairements and sleep issues early on sure would have been nice as well. What I most remember of my official diagnosis, which by then was rather moot, was that tender point test was damn painful. Damn painful and lasted quite a bit after as well. It is like p…

Its a killer

I have a nasty, nasty migraine today.  All day long.  But it did not start off as bad as it is now.  It was just a long day and nothing seemed to last long in regards to treatment.  So now I am awake and in loads of pain dreading tomorrow.  I hate not having choices and being in such pain.  Unfortunately not much I can do about it.  Just hope for some sleep tonight.  Just hope for the will power to make it through a couple more days so that I can rest on the weekend.  Hope it is not too hot tomorrow.  Hope I don't run out of hope.

Wondering how to work around work

There have been times in my life with FMS and migraines that I have had to alter the way I get things done because my brain takes a nap on the job.  Information does get in, but getting it out when I need it seems to be an issue.  Some things don't seem to stick at all, since that sort term memory really, really gets short.

I got through high school sleep deprived and skipping school to have naps and got fine grades.  When I got to University however my fibro fog and migraines became problematic.  I needed to learn how to study and how to edit my editing.  Being that I was the cramming sort of learner that remembered everything she read and had very little natural inclinations to organization, this was a tricky feat of mine.  Cramming was fine still.  I had a knack for pulling out important information, condensing it and cramming that... then downloading on a test.  However for more complex long term absorption, required for longer research papers I needed to make a lot of notes, …


You win some you lose some...

I got the verdict today from work.  They are not willing to allow me to partly work from home, which would have been an awesome compramise all around.    Their reasoning is that my role is a 'face-to-face' role... maybe they should tell that to all the clients I handle over the phone!  But I get their point.  I just wish there was a little flex room for my particular situation.  I can, however, work four to three day weeks if I choose, which is the option I had not wanted to take, but might have to in the short term.  It was also suggested I could change back to my formal role, but that would not be better at all... dealing with more people, shorter times and more concerns holds less appeal than dealing with max six people a day for specific concerns.  Still, can't say I did not come up with an action plan all on my own... even if it was shot down.  Gotta try.

The best solution of course would be if I could cure myself.  That would simply solve everyone's problems.  Bu…

Chronic migraine sufferers experience greater LPT in workplace

Chronic migraine sufferers experience greater LPT in workplace

"Key Findings:
Chronic Migraine (CM) is remarkably disabling compared to EM in terms of lost productive time among employed adults with migraine.Chronic Migraine (CM) sufferers experience greater LPT in the workplace than those suffering from EM. This study showed that in the age interval 35-44 years, the LPT of CM sufferers was 215.3 hours higher per year than those suffering from EM.  The amount of LPT among CM increased over age groups while it remained relatively low and stable among EM.  
Chronic Migraine (CM) is more costly than EM in the workplaceThis study also found that cost estimates increased for CM across age cohorts while remaining relatively constant for EM.  On an annual basis for those aged 35-44 years, this translated to the LPT for CM sufferers being $5,352.36 higher per year than those with EM.  The average cost of LPT per week was based on 2005 census median income estimates."

Yep, t…

Flash by migraining.

The worst migraines are the ones that catch me off guard at work.  Your just plunking along doing your thing, start yawning and then feel a little dopey... but your tired, so figure that is it.  Then the migraine slaps you up the side of the head demanding immediate abortive treatment.  Which killed if for a good six hours... but it is coming back now.  Brutal sharp bugger too.  Thankfully today was insane busy, and so that is a distraction that I really needed.  Although I felt my focus was way off.  Rambling and incoherent communication seemed to be the par.